How dynamic consent could become common practice and boost participation in scientific research

 

 

Personal data managed by yourself

Tom van de Belt

Assistant Professor Digital Health

 

The use of smartphones and wearable devices is not only interesting for an individual’s health and wellbeing but could also be a valuable source for medical research. People may want to share data for the ‘general good’, but probably refuse to simply share all of their data without being certain about the purposes of the study. Therefore, we developed - in closed collaboration with end-users – an innovative concept called ‘personalized consent flow’. This results in an optimal control for individual users, since they can decide which data are shared, with whom, and for how long.

We are currently piloting the model and hypothesize that more people will be willing to participate in medical research compared to non-dynamic (traditional) consent. We will share the results of this pilot as soon as they are available. The full-text is available here. Want to know more? Feel free to contact me or the co-authors.

2017-06-08T09:15:09+02:00June 8th, 2017|Categories: Blog|